Data and Research Core (DRC)
About
The mission of the AIM-AHEAD Data and Research Core (DRC) is to broaden the diversity and representation of healthcare data in artificial intelligence and machine learning (AI/ML) and expand its availability to diverse teams of researchers to address health disparities.
The DRC is not a single database. Instead, AIM-AHEAD seeks to catalyze an ecosystem of datasets to help address the lack of population diversity in data used in AI/ML models.
The DRC and Infrastructure Core also collaborate to assist AIM-AHEAD awardees in locating other data sources to support their projects. As part of its mission to diversify datasets used in AI/ML, AIM-AHEAD has conducted a landscape survey to raise awareness about datasets that may be of interest to the research community. Each dataset has its own governance process and rules for access.
AIM-AHEAD Data Partners
AIM-AHEAD-funded projects may apply to receive facilitated access and data concierge services from AIM-AHEAD data partners that emphasize historically under-resourced and under-represented populations.
How AIM-AHEAD Data Partners Expand Representation
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 |
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|
Race |
People who select a single race other than White, or who select more than one race |
3,087,377 |
2,220,068 |
|
Ethnicity |
People who select an ethnicity other than those listed under the race of White |
2,618,1291 |
1,962,904 |
|
Age |
<18 years old and 65 years and above |
2,623,517 |
2,374,283 |
|
Sexual and Gender Minority |
Individuals with sexual orientation other than ‘straight,’ gender identity other than |
326,557 |
Not well-captured |
|
Income |
Annual household income < $25,000 |
4,911,886 |
Not well-captured |
|
Education |
People without a high school diploma or GED |
Not well-captured but FQHCs generally higher than general population |
2,560 |
|
Access to Care |
Needed a medical visit in the past 12 months but cannot readily use the health care system or pay for needed care |
Not well-captured but FQHCs generally higher than general population |
Not well-captured |
|
Geography |
Residents of established rural and non-metropolitan zip codes, based on the HRSA Federal Office of Rural Health Policy data files |
1,276,525 |
83,3092 |
|
Disability |
People with a physical, functional, cognitive, or other condition that substantially limits one or more life activities |
788,7493 |
266,2263 |
Last Updated: June 2024
Source: All of Us reference UBR categories
1. People with Hispanic ethnicity at any race
2. Based on rural and suburban hospital discharges
3. Based on ICD codes for disability in study by Clark et al, including physical, visual, hearing, intellectual/developmental disabilities
Leadership
